COVID Vaccine and Privilege: When is it not about you?

Recently, an article from CNN, “A vaccination site meant to serve a hard-hit Latino neighborhood in New York instead serviced more Whites from other areas”, was posted on a medical social justice page of which I am a member. Among a number of others, I expressed my displeasure at this, but I also posted a comment in which I unfortunately said “People are scum”. It did not specifically refer to the white people who had obtained these vaccines, perhaps inappropriately, but certainly could be seen as that. I was called out for that comment, and that was appropriate. People are not scum, for better and worse. Scum is a substance that exists without intentionality. People, however, do have intentionality, and that can make them do things that are very good and very bad and everything in between. Certainly, doing something bad, or wrong, does not make a person bad; many religions have doctrines that are more or less comparable to “hate the sin, love the sinner”.

More to the point is whether the people referred to in the article did anything wrong or objectionable at all. While those quoted in the  article were very critical of this behavior, some of those posting comments on the page felt that these people (presumably people who otherwise met the current criteria in NY for the vaccine, by age or health status) were just trying to do what they could, and not trying to use their privilege to obtain vaccine intended for the minority community. They agreed that the system, and the structure for distributing the vaccine was severely flawed and probably inequitable, but that the individuals pursuing the vaccine should not be condemned. They acknowledged that some people, by virtue of education, wealth, computer-savvy, connections to other family members who may be more computer-savvy, and other characteristics, are more able to avail themselves of benefits. Even when this results in preferentially vaccinating white people rather than the minorities for whom it was intended (by placing vaccination sites in minority communities), it does not mean those individuals (many of whom are sick and elderly) are doing a bad thing, still less are bad people, or certainly scum. Nonetheless, the result is the result; the New York Times on January 31, 2021 reports that “Data showed that while 24% of city residents are Black, only 11% of vaccine recipients were. White New Yorkers received a disproportionate share of the shots.

The CNN report was not the only one critical of people “jumping the queue”. In a NY Times Op-Ed on January 28, 2021, Elisabeth Rosenthal MD, editor of Kaiser Health News, writes “Yes, It Matters That People Are Jumping the Vaccine Line”:

For weeks Americans have watched those who are well connected, wealthy or crafty “jump the line” to get a vaccine, while others are stuck, endlessly waiting on hold to get an appointment, watching sign-up websites crash or loitering outside clinics in the often-futile hope of getting a shot.

She adds, agreeing with some of the points made by the commenters on the site, “I don’t blame the lucky recipients; after all, hospitals would just offer the unused vaccine to the next person on the list,” but also notes that “The problem is that often, people are not really being “offered” the vaccine; in some cases, they are grabbing it through position, influence or deceit.” How often? I don’t know, and probably Rosenthal does not either. Or, for that matter, those who posted comments on the page, although they seem to be from NY and likely to know a lot more about the situation there than I do.

Most likely, the predominantly white recipients of the vaccine being offered in minority neighborhood represent a spectrum of people. They would include those who consciously believe that they are special and privileged and deserve to be at the head of the line, those who believe in equity but let that concern be overcome by their self-interest, and those who are appropriately candidates for the vaccine in the current phase but are desperate, confused, and, with no negative or ignoble intent, found their way to that place and time. Defending the latter, however, does not excuse the former, and there are certainly many of them. Freeman’s Law (which I should probably rename “Freeman’s First Law” so as not to confuse it with Freeman’s Second Law, to which I referred in my blog post of January 28, 2021, “Vitamin D, false nostrums, and conspiracy theories: The world has enough real problems,”) states that in any program designed to help a group of people, no matter how narrowly defined, those with the relatively least need are most likely to benefit. Thus in a program designed, say, to help homeless pregnant teenagers with HIV living under bridges, those who have some greater resources (a bit more education, a slightly less traumatic childhood, etc.) will be the ones who are able to access it first. The larger the universe of people who are targeted, the more people who would qualify for services, the greater the disparity is likely to be. This is of course especially true in the case of COVID vaccine, where the target population is, ultimately, everyone.

Another aspect of the comments posted that was interesting to me was that they referred to those seeking to get the vaccine as “patients”. Perhaps this is understandable on a medical site, and it is quite possible that some of those involved were patients of those doctors who made the comments. I have sometimes been critical of the use of the term “patients”, noting that it was the “medical” word for what in English are called “people”, and that it could tend to diminish their humanity. I am quite sure this was not the intent of those using it, but in this context it has quite another flaw. Calling folks “patients”, especially when they are not your patients, carries a connotation of dependency, needing help from their doctor. Calling them “people” implies more that they have agency, the ability to make decisions, prioritize needs and values, and act on them. While it is often true that many people, particularly the sickest and oldest and least educated and least empowered do need help, it is also true that when the affected universe is the entire population, it includes all of us, all people, adults and children, young and old, Black and White, rich and poor, doctors and “patients”. It includes those who are the wealthiest, most educated, most connected, and most empowered, who are often find ways to get to the head of the line. Thus, prioritizing who should get the vaccine first and enforcing that is critical. Social justice is about promoting equity, which means giving more help to those who have the least and need it the most, and reducing the temptation to give in to those whose privilege or loud voice is most demanding.

Rosenthal writes:

The United States has allowed its public health system to become a hollowed-out underfunded mess, and many vaccination clinics are being run and staffed by contracted private companies. And the private sector has so far proved too vulnerable to private favoritism.

Until the supply is sufficient, the government needs to give the shots to the people and places that need it most, and find ways to ensure that the plan is followed; the system could prioritize ZIP codes that have high Covid-19 infection rates or target low-income populations who might otherwise have a difficult time securing an appointment.

She is absolutely correct, but clearly targeting certain ZIP codes is not sufficient, as the Times describes on February 2, 2021 in ‘Even in Poorer Neighborhoods, the Wealthy Are Lining Up for Vaccines’ (Feb 3 print title: ‘Where poor suffer most, wealthy find vaccines’). And a 52-year old celebrity on-line fitness trainer got the vaccine as an ‘educator’.  Meanwhile the COVID surge most hurts those in the poorest neighborhoods, as in LA. And people behaving as though the doors were opening at a department store the day after Thanksgiving is not just a NY problem. a friend in another city, on seeing the pushing and shoving, both literal and figurative, that went on when they went to get their vaccine, said “I wouldn’t want to be in a concentration camp with those people.”

The problem, if you think it is a problem, of empowered people going to poor neighborhood to get their vaccines is real and ongoing. I think that folks who do so are doing a selfish thing, a bad thing. This in itself does not make them bad people, or certainly scum. However, for the record, I personally believe that there are indeed bad people, and that doing enough bad things often enough, predictably enough, and bad enough does make someone a bad person (see, e.g.,”Nazis”).

We should have compassion for those with need, and the most compassion for the greatest need. And recognize that “me” is not the hallmark of social justice.

Vitamin D, false nostrums, and conspiracy theories: The world has enough real problems

Near the end of December, Tiffany Hsu, writing in the NY Times, discussed “Dubious COVID Cures”. She compared them to the similar nostrums popularly recommended for the 1918 influenza epidemic, when ‘a spate of ads promised dubious remedies in the form of lozenges, tonics, unguents, blood-builders and an antiseptic shield to be used while kissing.’ She quotes the head of research at MyHeritage, Roi Mandel as saying “So many things are exactly the same, even 102 years later, even after science has made such huge progress.”

Even after all this scientific progress and all the advances in health care, people are still fascinated by over the counter magic drugs, things that seem easy, and are often cheap (although usually very profitable), and somehow better than the treatments being offered by the medical community. This is, of course, even more so when that medical community does not have a whole lot to offer in terms of treatment, a particular issue for virus infection, and mostly talks about prevention, about such things as isolation and physical distancing. Wouldn’t it be better if you could just take something that would cure it or make it better or at least decrease the seriousness of an infection? And, you know, there are ‘studies’ that show it works (although of course I haven’t actually read them and would have no idea how to understand if the research was legit) and, you know, there are doctors who recommend it!  Like ‘Dr. Pierce’s Pleasant Pellets promised that the pills — made from “May-apple, leaves of aloe, jalap” — offered protection “against the deadly attack of the Spanish Influenza.”’ Oh, wait, that was from 1918 – but we have Dr. Oz!

This is not to say that some popular treatments do not have benefit, and this is especially good if they do not harm you, and if they are cheap. One such could be Vitamin D, which has been advocated (most recently for COVID-19, but for a lot of things) by many people, some of whom are actually experts. As with many “natural” remedies, most of the basis for this is in syllogism. You extrapolate from something that is known about a substance (commonly, as in the case of Vitamin D, that it “promotes immunity” – a pretty general, non-specific claim), but such claims are uncommonly backed up by rigorous testing to see if it actually does work. (Freeman’s Second Law: Something that makes sense is properly called a “research question”. You wouldn’t want to study something that didn’t make sense. However, to know whether it is actually true, you have to actually do the studies!)

Recently, The Guardian had an article titled “Does Vitamin D Combat COVID?”. It is very positive about the vitamin, citing many important people (unsurprisingly, being The Guardian, many from England), but does stop short of claiming that it will definitely work. The claims for benefit vary: it makes it less likely that you will get infected, that if you get infected you will get less sick, that if you get sick you are less likely to die. Not really quantified though. The reason is that there are studies that show both benefit and not, and none of them are definitive. There is also concern that people with more melanin in their skin, presumably a genetic adaptation to being from areas with more sunshine (and thus more vitamin D) can become vitamin D deficient when they live in areas in northern latitudes with less sun. Obviously, this is confounded by the existence of a variety of other social and medical health risks accruing to dark-skinned people in northern latitudes. Maybe it is an additional one, but it is unlikely that just taking Vitamin D will solve the problem of inequity.

The actual evidence is summarized in a recent piece in JAMA, “Sorting out whether vitamin D deficiency raises COVID-19 risk”. The first thing that you note here is that it is answering quite a different question – whether people who have low vitamin D levels have greater risk (and, thus, presumably, should take vitamin D supplementation), not whether everyone should be taking vitamin D. ‘Research findings about vitamin D and COVID-19 have been mixed and sparse,’ is the key finding, and the ‘Upshot’ of the pieceis a quote from Dr. Catherine Ross, a nutritionist at Penn State: ‘“Avoiding vitamin D deficiency is always a goal.”’

So you should take vitamin D supplements if you are deficient (Dr. Fauci says this also), although knowing if you are deficient would require both your having your level measured, something which is not recommended by the most reliable source, the US Preventive Services Task Force (USPSTF) for asymptomatic adults (although it is by many who are consultants to vitamin D advocating groups), as well as to know what the level below which you are deficient is: 20? 30? 50? You can find all of these in the “literature”. And it is concerning when advocates have industry ties. Nonetheless, vitamin D is available cheaply and generically, is safe if you don’t take too much (as a fat-soluble vitamin you CAN overdose on it), and Dr. Fauci takes it (same article). I took one this morning.

But the really big question is not vitamin D, even if the evidence is not absolutely clear. Overall, it is pretty safe and pretty cheap and has a conceptual justification and at least some studies show some benefit. The really big issue, as put forth early in this piece, is why do people continue to search for magic treatments that are not mainstream? Why do they often trust their friends and neighbors and strangers on the Internet more than doctors? I don’t know for sure, but in Hsu’s article comparing today to 1918 he quotes Jason P. Chambers, associate professor of advertising at the University of Illinois: “Human beings haven’t changed all that much. We’d like to believe we’re smarter, that we’d be able to spot the lies, but the ability of advertising to maintain its veneer of believability has only become more sophisticated over time.” Unfortunately, we’re probably not. That is why advertising is so successful.

This fear is related to not only mistrust of science (it is hard to understand) but to conspiracy theories in general; recently the “political” belief in a “deep state”, that “they” are lying to us and trying to keep important information and benefits from us. Of course, “they” may be; I certainly do not trust the leadership of our country (or any country) to necessarily work in the best interests of the people, except of the richest, most powerful and well-connected people. I absolutely believe that Big Pharma is only interested in making as much money as possible and selling us drugs which may not be any better than cheaper ones, or none at all. But the suspicion that science and medicine are working to harm us often segues into pretty odd stuff (I was recently sent this nonsense about the COVID vaccine being a plan to engender female sterilization!) (On the subject of conspiracy theories, Andy Borowitz’ recent satire – QAnon merging with the Elvis-is-Alive groups -- is, as usual, not far off the mark.)

I am sure that some of this is the fault of the arrogance of scientists and doctors. A good friend was recently diagnosed with breast cancer and was told by her doctors to “not go on the Internet, to not talk to anyone who has had it, because everyone’s cancer is different”. This is ridiculous, although I understand that they probably get frustrated by people coming up with silly or, worse, dangerous treatment ideas that they have heard from someone, or stories from their sister-in-law’s neighbor. This can of course be much better addressed, with something like “You’ll hear a lot from people who have had breast cancer; it is a common disease. You will certainly look things up on the Internet. Listen to them, but remember you are you, and your experience is not likely to be exactly the same as theirs. Please don’t take any treatments without discussing it with us, so we can make sure there is no danger. Welcome the support.” And, I would be wrong to omit, the big reason that doctors feel so pressured and don’t have enough time to talk to and discuss things with folks is in large part because the big corporations they work for (for-profit or “non-profit”) are about maximizing income, not health.

Still, people seem to find themselves drawn to “alternatives”. They like “natural”. OK, keep your mind open, but remember than “natural” is not necessarily better. Any substance that has any effect, positive, negative, or neutral is because of chemicals in it. That they occur naturally does not make them safer than those that are manufactured.

And watch the conspiracy theories and think about what is important. Life on earth could be extinguished by climate change. That is real. War which leads to nuclear war could do it first. People all over the world are starving, are without housing, without basic health care, subjected to natural disasters and man-made ones. They are being killed, often in genocides. In all countries, including ours, there is structural oppression of people based on race, religion, gender. Wealth is being transferred from regular and even poor folks to the richest at an astounding rate. Authoritarian leaders, and even fascists, are proliferating.

These are real problems, that need real concerted efforts to combat. Work on these. Don’t be distracted by non-issues.

Emergency services, COVID, and the health system: Your life could well be at risk

I recently had a very unpleasant health event, involving severe abdominal pain for most of a day and night, and many days of recovery. The details of my specific condition are not particularly important, other than to say it is a chronic, recurrent problem, resulting from an event decades ago; it could well need emergency surgery and can have serious results. The point is that I had to decide whether to go to the emergency room that night, and to discuss the issues, both personal and structural, that impacted that decision, and what it demonstrates about our healthcare system, made even worse by the stress of COVID.

Considerations on the side of “go to the ER” were 1) I was in a lot of pain that was lasting longer than it generally has (say twice a year), and wanted to not be, 2) I knew pretty well what was causing it and that, while it had happened before and usually resolved, it could also NOT get better and maybe require emergency surgery, or worse. Considerations on the side of “don’t go to the ER” were 1) it has usually in the past resolved, eventually, on its own, and 2) the idea of getting in the car to go to the ER, and then waiting to be triaged and seen, and maybe imaged, which was likely to take many hours, all while in such pain, was a very negative incentive. If I was going to be writhing in untreated severe pain, I would prefer it to be in my own bed than in the waiting room of an ER. Plus, COVID. Both because it has made the crowding and wait times in ERs and hospitals much worse than “normal”, and because being there increases the risk of exposure and infection. I happen to live in what is currently a “high COVID” state, but nowhere is a really “low COVID risk” area. As it turns out, I didn’t go, and by morning, after about 18 hours, the worst was past. This time. But it will happen again and I will again have to decide what to do.

As do many, many thousands of others, every day, in the US. For many people, a major concern is cost – because visits to the ER are costly for those with no or poor insurance (really a lot of people). Fortunately for me, I’m not in that group. For others, it is because of fear of finding out what the problem is, and that it will be something really bad that they don’t want to know about. That also wasn’t really my issue; as a physician who has dealt with this, I knew what the problem was. Unfortunately, that can make it worse, since my fears and realization of the possible outcomes are based in evidence and not just fear. For yet others, it is the expectation that because of who they are (not White, poor, poorly insured, not well-dressed, have a history of alcohol or drug use or mental illness, or something else that doctors tend to associate with making one of less value) that they will be pushed back in the line, not believed, have their stories discounted, and generally be treated badly. Not really me either, although my physician privilege is decreased now that I am retired in another city, and do not get to go to the ER in the hospital where I work every day and people know me. For a lot of people, it is a combination of these, synergistically making their experience, and expectation of that experience, worse.

In case there may be anyone who is skeptical about my saying it is likely to be hours of waiting even when one presents with an emergency condition and is obviously educated and “respectable” (as a physician or nurse), it happens, and is happening much more continuously in the Age of COVID, when facilities are completely stretched to their limit and resources and people who work there are stressed to the max. Just recently, the last few months, two people who are close to me and are healthcare professionals have been through this experience. One had acute appendicitis, and needed emergency surgery, and after waiting many hours at home before venturing to the ER, waited there for 7 more hours before being seen. Luckily, they are now OK. It was not a positive experience! The other had a similar serious need, a ruptured diverticulitis causing peritonitis. She also waited in excruciating pain for hours, despite the fact that she was accompanied by her husband, a physician from the community who has practiced here for decades who was reduced to screaming at staff before she got her necessary emergency surgery. (For the record, these two people and I are all “seniors”, but these scenarios can and do affect everyone; my initial crisis was when I was 40 years old.)

The best advice anyone can give me is “get an ambulance”; they’ll see you sooner than if you arrive by car. This may well be true, and it may be good advice for me or for any other individual who is not worried about an additional $2000 bill, but in no way addresses the systemic problems that obviously exist.

The first of these is the incredible stress put on the system and the individuals working in it, doctors, nurses, and other healthcare workers, by the COVID pandemic. The burden on hospitals and healthcare workers has been phenomenal. In this sense, doctors and nurses and others on the front line are our heroes, as they are often portrayed. Yes, sometimes they can exhibit inappropriate behaviors. These can even be exhibited by folks in whom they rarely manifested before as a result of the continuous stress of working in the situation that they, and we as patients and as a society, find ourselves in. The governmental response to the pandemic, led by a federal administration who acted as if their intention was to do everything completely wrong, was shockingly inadequate. Yes, building new hospital capacity is possible and usually slow, but some localities did it, and yes, training and equipping more healthcare workers takes time. But there is no conceivable justifiable excuse for not having sufficient PPE, for example, months into the pandemic. This could only happen because of the worst possible management. Remember that this is the country that put a person on the moon 8 years after the first suborbital flight, that built the interstate highway system, that could assemble battleships in weeks during WW II, that has enough money to give trillions of $$ in tax cuts to billionaires and corporations. It only did not happen because of more than ineptitude; it happened because of an intent to do evil. We can hope that at least much of this can be reversed by a Biden administration.

The other big structural issue is our terribly designed and implemented healthcare nonsystem that discriminates against people based upon wealth and insurance status, race and ethnicity, age and pre-exisiting conditions, geographical location, and in appropriate allocation of resources that in the best of (non-COVID) circumstances sends a hugely disproportionate number of true emergencies (medical, surgical, trauma) to some hospitals while others have relatively low, and more mild, usage of their emergency facilities. It is also the fact that many people cannot get into see their primary care physicians promptly, or do not even have primary care physicians (or other providers, such as NPs) so end up waiting until they are severely ill and going to the ER. These are people who, if they get hospitalized, can be considered “primary care preventable” hospitalizations. That is, if they had been able to easily and promptly see a primary care doctor for their illness, and at least as important, had their chronic diseases effectively managed and controlled, would have not needed hospitalization – or emergency care. This needs another set of structural solutions. It needs, first off, a universal national health insurance system. Every single person in the country needs to be completely covered for every medical necessity, without copays, deductibles, etc., and we all need to be in the same program.  The pandemic has clearly demonstrated the vulnerability of employer-based coverage. It is long past time, if it ever was, for ideas of gradual piecemeal expansion of Medicare, ACA, Medicaid, etc. If everyone is not in the same system, it is not a possibility but rahter a certainty that some will get better care than others. Separate, the Supreme Court ruled in 1954, is not equal in education, and separate insurance systems cannot create equality in healthcare.

A universal health insurance system, such as Medicare for All, is not going to fix all of the things that I discussed above. We need to ensure that there are hospitals and ERs available to all people. We need to ensure that all hospitals are welcoming to all patients, and that there is a rational system of referral from smaller to larger hospitals.  We must ensure that there is adequate primary care capacity so that everyone can have a provider that they can see regularly, and promptly when needed, and do not need to access ERs for either primary care or for urgent conditions that could have been prevented by good primary care. And we need to make sure that there is adequate emergency capacity for all emergencies to be cared for emergently, and that ERs, and hospitals, and health systems, are designed and funded and run based solely on what best needs the health needs of the entire community, and not on what makes the most profit for the owners. A universal health insurance system is necessary but not sufficient.

We need all that, and need it yesterday.

Protecting the community: Essential workers, nursing homes, and the incarcerated

The COVID-19 pandemic continues, resurging across the US and in many other places. Different strategies have been adopted in different places, with varying degrees of success in slowing the spread of infection and death. This should provide us with information on what works well, and what strategies we should be adopting. For one example, family medicine colleagues in São Paulo, Brazil, report on their experience in nursing homes in the Royal Australian Journal of General Practice. They used public health management techniques including no visitors, rigid use of testing, recommended PPE and isolation, and others, as well as medical management and psychosocial management working with families and patients to help them through this process. They have had only 4 cases in the last 90 days (as of the November publication date), no people in isolation, and a low death rate.

 In Arizona, as in the US, case rates and mortality continue to rise.  We have more cases than ever, and fewer hospital and ICU beds. The state has chosen to address this issue by lifting restrictions on businesses, opening restaurants, bars, salons and gyms. Based on all evidence from everywhere, this is likely to further increase infections and deaths (“Health chief changes benchmarks so no Arizona business will be shuttered in pandemic”.)

Thie new policy is clearly in response to business owners concerned about their livelihoods and the probability that they will even survive. This is a real problem for them, and for us, in the horrific economic downturn that has accompanied the pandemic for most people (for major investors, however, the stock market has done well). Pima County, where Tucson is, has taken a more aggressive and restrictive approach; after more than 320 cases reported among county employees, including the chief health officer, it has furloughed 20% of the work force for 3 weeks. Of course, this will be an economic hardship for those people’s families.

Thus we have the situation where we know what to do to prevent increased infections and deaths, but have to also address the serious financial impact on regular people who lose their jobs and businesses and incomes. Sadly, efforts to reopen have been almost linearly associated with increased infection rates and deaths. The efforts taken by our Brazilian colleagues were effective in an important and high-risk, but ultimately limited, venue, that of nursing homes. The fact that the increased infection and death rate in our communities will take its greatest toll on the elderly and those with chronic disease, not those whose exposure to others in workplaces, schools, and meetings (although they are also at risk, and not immune) makes it even more complicated. The leadership at the federal level, sometimes inaccurately described as “lack of leadership” when in fact it is actively leading us in entirely the wrong direction, is making things much worse, and creating and exacerbating an incorrect understanding of the disease among many people.

Those who work in high-risk occupations, who cannot “phone (or Zoom) it in” but rather have to be present, most often among the lowest paid, those who live in multi-generational and multi-family households, are paying the highest price. These people are not only members of racial and ethnic minority groups, but those groups are far over-represented in their numbers. A recent article in the New York Times again makes the point that Black and Latinx people are hardest hit, not because of any genetic or biologic reason but because of their social and economic situation resulting from centuries of structural racism. Race, it is clear but requires repeating, is a social, not a biological construct. The negative impacts on health, income, longevity, education, and everything else is not from “race” but from “racism”; indeed, the only significance of “race” is that it is the basis for racism.

Now there is a vaccine (actually, two, maybe soon three, vaccines) and administration of them is rolling out, especially in the wealthy countries that have acquired most of the doses (of course, in the US the Trump administration jeopardized this by passing on an opportunity to acquire more doses of the Pfizer vaccine, and this was certainly not to help out the poor parts of the world!) The debate now moves to who should get it first and in what order. In most places in the US, priority is going to health care workers and nursing home patients, which makes sense. They are, respectively, the most likely to contract and transmit the infection and the most likely to die from it. And then? Who? Those with the highest risk or those with the best connections? In many hospitals we hear reports of the C-suite executives (the “front office”) being at the front of the line for vaccine, despite the fact that they do no health care. Nice of them to want to “model” behavior, but the vaccine should go first to those who see patients. The priority should be those who not only interact with the public, but who cannot do their jobs if they don’t actually show up for work, and among those, people who would be the worst off if they lost their jobs (and those who have already been laid off but might be able to come back and begin working again). The last would be those who can continue to work from home, or are retired without major health risks, and can continue to isolate themselves.

Another major group that is finally getting some media attention, even if it is unlikely to get much vaccine, is the incarcerated population. The AP reports that “1 in 5 prisoners in the US has had COVID-19, 1,700 have died”. This could be predicted; it is a group crowded together, unable to isolate, often with pre-existing conditions, and essentially without agency – they have to do what they are told. There are, broadly, two reasons for immunizing them. The first is human – they are human, and they are at very high risk, and they are already being punished; they should not be further punished by getting this disease. The second is practical; prisoners are not, actually, entirely separate from the rest of the population. In addition to guards and others who move between the inside and the outside, many prisoners are released; this is most especially true for jails, where the length of stay is short (usually awaiting a court appearance for those who cannot post bond), and thus is really part of the community from which inmates come – and go back to. Nathaniel Lash makes this case convincingly in the New York Times Sunday Review, “The coronavirus has found a safe harbor”. For example,

Cook County Jail was the site of the largest detected outbreak in the country early in the pandemic. In recent weeks, it has exceeded that — there were 340 active cases among inmates on Dec. 16. The population, meanwhile, has returned to levels typical before the pandemic, about 5,500 people.

We should have fewer people in jail.  It is outrageous that people are incarcerated because they cannot pay bond, overt discrimination against the poor, and cannot afford to support the very politically powerful bail-bond industry. This was true before COVID, and is more true now. ‘“There’s no question with a new peak in infections that we have to be decarcerating now,” said Dr. Emily Wang, the director of Yale School of Medicine’s Health Justice Lab. “If we don’t have larger-scale decarceration efforts, we won’t control Covid.”’ The answer is bail reform that corrects these inequities – vicious inequities with frequently fatal outcomes. But the opposition continues to cloak itself in the mantle of morality rather than greed, public safety rather than racism. ‘“We’re seeing the extent of the opposition to bail reform: They so strongly oppose it they will do it in the face of a pandemic,” said Andre Segura, legal director for the American Civil Liberties Union in Texas.’

The US incarcerates more people than anywhere in the world, a lot for relatively minor drug offenses. This does not prevent crime, especially violent crime, and it continues to rise even as crime rates decrease. In 2020 it is out of control, it is inhumane, and it is a significant cause of the spread of COVID. 

We need to get the vaccine out there soon, especially to those at highest risk of both dying and transmitting it to others. Clearly, the incarcerated population must be included.

 

 

 

No way to run a business: the US healthcare system is not about caring for you!

The most distinctive and defining characteristic of the US healthcare delivery system is how poorly it serves people, and the number of hoops, obstacles, and downright obfuscation people need to work their way through to get care. The most important problem is that we have worse health outcomes and more premature death than any other industrialized country, and the excessive cost of achieving those worse outcomes (the only place where we’re #1!). But the sheer difficulty, pain, and low yield of going through the information needed to make the wisest decisions (actually wise, we will see, is virtually impossible in our system) takes a – completely unnecessary – toll on all of us.

The reason for this situation, very simply, is that the healthcare system in the US is not structured to deliver maximum health benefit, but to deliver maximum profit to the major players – and that is very few of us. It is absolutely critical to remember this core fact, because every other characteristic of our healthcare system derives from it. Worried about surprise medical bills when some of the doctors at your in-plan hospital are out of plan? Worried about paying for the wonderful new medicines advertised on TV that promise you cure for thousands of dollars a month? Worried about whether you can afford the premiums for the plans your employer offers, especially if you need to cover your family? Or the premiums for the better ACA-plans? Whether you can bet on your current health status, if it is ok, continuing into the future? Whether you can survive until you are old enough to get Medicare? And then, when you are, whether Medicare will cover enough of your bills, or if you need – and can afford – a Medicare supplement plan? How about choosing a “Part D” drug plan? Why are the websites and information so opaque and difficult? Is there any plan that is truly of value? And even if “of value”, can YOU afford it?

These questions just touch the surface. Then, you actually need to access healthcare services. Then it gets worse. Primary care doctor? Can you get an appointment? Use urgent care? Is your problem on the list of things that they can competently manage? Emergency room? Wait until you are so sick they have to take care of you? And what about those drugs…?

The specific problems that this system creates for individual people are often overwhelming, and become the focus of people’s lives when they do have chronic diseases or ongoing health needs. Politicians and their policy advisors who keep talking about addressing them one at a time are at least intellectually corrupt (setting aside the question of whether they are also financially corrupt) in believing that a patchwork of – patches – can make people, at least temporarily, think that they are doing something to help while maintaining a predatory structure. Let’s just look at a few recent examples and stories.

The Upshot in the NY Times recently had a piece on how the pandemic has increased the use of telemedicine, and how this might lead to better access to emergency care, citing a very positive study done by the Veterans Administration. The study shows, among other things, that same-day access to primary care can obviate the need for emergency care. Beyond that, having a regular source of primary care, and being able to get in when you need to, decreases hospitalizations and mortality. Of course, it is important to remember that the VA is (like the military) a single-payer health system and works better than the rest of US health care within the constraints of continually decreasing funding, part of a general Congressional and executive effort starve it for funding, specifically to ensure it doesn’t work as well as it could. Those same legislators then blame the VA rather than themselves for veterans not getting the best possible care, a tried-and-true tactic for evil politicians. Except the VA, and military health care, do work better than the private sector. (For more on the VA, see the excellent article “Shaping the Future of Veterans’ Health Care” by McCauley and Ramos in the New England Journal of Medicine, Nov 5, 2020, which requires a subscription.) The comments by the brilliant and incisive Dr. Don McCanne, found at the above link to the Upshot article, clearly makes these important points. And why can’t you get same day visits, or even prompt visits, with your primary care provider? Remember the key factor in all US  healthcare; it is usually not that your doctor is unwilling; it is that they also work for a corporation whose policies are about maximizing income and profit, not about improving your health.

In a recent conversation with a friend – also a senior citizen knowledgeable about health care policy, who was long on a medical school faculty and now lives in a relatively rural area – we discussed the best choice for a Medicare Part D plan. I noted that in 2020 I had assumed that my insurer would, absent my making a change, continue me in the lowest-cost plan as it had the two years previously. It didn’t; it automatically bumped me up to the highest-cost plan. With no added benefit, because of Catch-22 – I could never make my deductible, and thus have the plan kick in, because all of my drugs were “tier 1” and didn’t count (the calculators offered are only of use if you use high-tier high-copay drugs like those advertised on  TV). This year I made sure to change back to the cheap one, so I can pay $17.50 instead of $55 a month for no benefit. My friend agreed and will choose the same plan. But did note that if a family doctor and a health economist had trouble figuring this out, it might be hard for a lot of people! It is this characteristic of our health insurance system that makes the claims of those who advocate for private health insurance because it gives you, the consumer, “choice” are completely bunk. Almost no one can read, digest, understand, and utilize the information that is (sometimes) provided, in all different places, to get to a decision on what will work best for them. And, for the few who can, it usually turns out not to be very good! Remember: this is not some quirk, it is how our healthcare, and health insurance, system are purposely set up: To be confusing, opaque, and beneficial only for the sellers, not the consumers.

My friend and I also talked about several interactions he recently had with the health system his primary care doctor is part of. One involved his receiving (as an ex-smoker) a scanning CT scan and suggesting that they obtain an older one, from the medical school where he used to work, to compare the new one to. “We don’t do that,” he was told by the person at the other end of the phone. Another was about finding out how he could get documentation to be in an early group to get COVID-19 vaccination when it becomes available, given that he is high-risk not only by age but by having chronic diseases. They don’t do that either. These are unacceptable answers, as he told the office of the vice president he complained to, and who agreed to make things happen. This is not a flaw in the system; it is how it is structured, for everyone. Most people, you see, will not complain, and thus will, well, get screwed. But it saves the company money. This is a core way health insurers function. The higher the bill from a doctor, the more routine it is to just deny it, making the doctors work to prove they should get paid. Clearly, this is a particular issue for surgeons, who usually have staff who routinely fight with the staff of the insurance companies to appeal these denials.

There is an old saying that “this is no way to run a business” But, for most companies involved in health care – insurance companies, pharmaceutical manufacturers, long-term care companies, hospital systems, and increasingly large physician groups owned by corporations, it is the way they run their business. And it is a very profitable way to do it.

It is just no way to provide healthcare.